Sunday, May 31, 2009

My Theory - The Quickie Version

Lest it disappear when I hit submit again I'm going to post a very condensed, "quickie" version of my theory of the cause of CFS.

I came to this belief back in the '80s after a bit of observation. Now I will remind you that my first dx was "pesticide poisoning" due to tests and symptoms. I shortly realized that PS causes EI (environmental illness, as we called it back then) , MCS. However it was a couple years before I met one other person who had MCS. She introduced me to friend #2 with MCS. Those two were the only ones I knew until 1995 when I got on the internet. As for CFS, though I had it from the earliest part of my illness I had no clue about that until I was dx'd in 1989, the same year my son who was 15 at the time got CFS too. Back then the Dr. called it "CEBV", Chronic Epstien Barr Virus. Other than my son, who didn't get his dx until four years later, I knew no other soul with it until I got the internet in '95.

However I did begin hearing about GWS shortly before I acquired the net. My sister worked on the registry at the VA for GWS and reported to me that the guys returning had the same symptoms I did! That only confirmed my suspicions.

So here is my theory :

Long term or traumatic stress causes various biological changes in your body PLUS
2) a virus or vaccination (I had a rheubella son had a weird virus)
3) an exposure to a toxin (toxic chemical)
that all happens within a short timeframe.

Now, In 2009, almost thirty years after I came to form my theory I see that Dr Gupta has come out with one of his own that is similar. The main difference is that I see a combination of the three things conversion during a short period of time, while his theory only combines two. I still believe I'm right.

Looking at the GW vets-- they had multiple vaccinations AND exposure to such things as Sarin (similar to the pesticide I was exposed to btw) WHILE in war time and separated from family, friends and their usual jobs, ie stressed. Though often people aren't aware of toxins they are exposed to they are present in most people's lives.

Next post I'll share with you the rest of the post that disappeared, my theory of accidently brain connections/ memory ties and some symptoms, possibly even the reason for some sensitivies!


Monday, May 25, 2009

Another Night ...

Here we go. Another one of those nights, you know the ones? Stupid wierd symptoms want to show up just when it's time to hit the hay and keep you awake? UGH ! I'm a bit nauseous- ok that's not terribly unusual but it is starting up at this time of night. The slight tingling-numbness (not quite numb) around the mouth isn't usual for me either. But the sudden hip-thigh ... hmmm not quite sure how to describe this... not quite lame but sort of - uncoordination for sure which showed up first and was immediately followed by the rest, including the severe bunching up of the muscles in my shoulder is.

(and coming here I remembered that last post I wrote went into the great oblivion when i hit publish and I guess I never remembered to come back and rewrite the thing again. The site went down just as I had submitted it the last time. And the post was sooo good too! Honest!)

Looks like it might not be a very good night here.

(but at least maybe this will publish this time?)


Friday, May 15, 2009

Would You (Not) Be My Neighbor?

Once upon a time in Mr. Roger's neighborhood there was a sense of community in the neighborhood. People knew each other and acknowledged one another from front porch across to front porch where they sat sipping lemonade. Ah, what a nice place to live, huh?

I don't live in such a neighborhood. Today we rarely know our neighbor's names, let alone their stories. However, I do know the names of a few of my neighbors. A few of them have been good to my daughter. As I can't get out much she knows them better than I do.

Today I was greeted by one neighbor. Ok, I'm being polite. It wasn't exactly a greeting. It was more of a scolding zone. It seems the neighbor is a bit displeased with the current state of our front lawn. He was in no way interested in the fact that we had to borrow a lawnmower, and that our car has been out of commission so we couldn't pick it up yet. Nor fact that we are both disabled, which I thought he already knew, much less that we've both recently been laid low by some virus. He also seemed to be under the impression that two folks who are unable to work should still be rich enough to dash out and hire help if they are unable to push a lawnmower. Oh, and most significantly, Mr. Neighbor said, "Everyone's got their story." Sigh. Obviously Mr. Perfect never had one of this own.

You know I'll bettcha that out there in Lake Wobegon and Mr. Roger's neighborhood if a neighbor saw danderlions springing forth in your a-smidgeon-too-deep grass some kind, compassionate neighbor would have come over and chatted about making "dandylion wine" and another one's son would have showed up with a lawnmower and made that yard look like a park. Yup, they probably would have had the Lady's Fellowship cook up a nice basket of their best recipes and sent them over with the lawnmowing son.

As I said, unfortunately I don't live in that neighborhood. The only thing neighbors seem to want to help with these days is helping to pile the stress load higher.

---off for long weekend. (It's going to be a very loooong weekend in this neighborhood)


Thursday, May 14, 2009


I wrote a nice long post here last night explaining a theory I had years ago about what causes these dumb diseases. It was good. Yup, it was actually great! I was telling you all about my theory and why I believe it and what I had come across during these almost 30 yrs of illness. I was also telling you about things I have read about resently and how they might relate. I was a very nice if rather long post.

My brain function was off enough that I kept having this arghy old typical laptop typing problem. You know the one where the cursor jumps to another location as you're typing because your hands are dangling over the touch pad ? That requires back spacing and figuring out what it is you were saying and typing it all over again. That happened several times.

So where is it? you ask. Well... You see... I had it all done and went to hit submit only to find it went "POOF!" Gone. Done for. Vanished! Vanished into the dark oblivion of cyberspace somewhere lost between my computer and the blog server that just happened to go down at that very moment for maintenence, or so the message said. But I wondered if the net grimlins weren't at it again.


Well, I guess you'll just have to come back later when I have recollected my thoughts, and my mind, enough to rewrite the thing once again and get it posted.

Meanwhile--- have a nice day.